My Stories

Today we got our extra tubes out! All three drainage tubes. Jacob was so brave. And now he only has his IV tubes. Back to our new...

“My legs feel better, the pain is better, except for my big balls. My Big balls keep getting in the way. I can’t even wear pants!” It’s...

You just got to have Faith. New social hierarchy (bottom to top below): Men Women FAITH And she’s REAL. No literally, she’s REAL!!  No...

Got a note from a Friend of Nightwing… She had been thinking about the statical odds of having Steve and Jacob’s diagnosis in ONE family....

There is a weaker species and I have the data to prove it. Men. All of them. I find it remarkable how weak they are. How they require...

Want to see a superhero?! Here he is getting up Here he is when we told him he could go back to bed (that got him excited). I can’t...

Have I shared that I’m a terrible writer? Not sure if I have. I’ve been told my entire life that I’m a terrible writer. From teacher to...

He stares. Throughout the night he wakes up and stares. Not really sure what he is looking at. On one occasion I saw him looking at the...

Maybe it’s the eyelashes. Those have always been an outlier. Not just in our family, but seemingly in life as people stop him on the...

We’re all taking a good deep breath here. Jacob is breathing on his own. We all are breathing on our own. And I breathe in awe. Jacob’s...

I only write about last night because I prepped (understatement here) but I missed a crucial step.  I was ready for him to look scary. I...

I think life can be summed up as a series of deals. Every day is a task of deal-making. These deals are with others and even ourselves....

They are closing now. All organs were saved and they got all the cancer they could see. 12 hours. Thank you God. Thank you doctors. Thank...

Green light. Green light. Everywhere. It wasn’t a rave. It wasn’t an alien planet. It wasn’t a stop light. It was a circle. A circle of...

On the way to the hospital Jacob had a request. He requested two songs.  Party in the USA and Fight Song. Fight Song felt especially...

Today the new iphone was released. Go invest in some productivity . While you’re at it…invest in your life. Your reminder HERE Or skip...